tag:blogger.com,1999:blog-8162123254829129332.post5899838774153118643..comments2023-05-01T07:51:29.641-04:00Comments on Adventures in parenting: daynahttp://www.blogger.com/profile/10354613961478245556noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8162123254829129332.post-13090264494318393382011-07-26T23:57:29.476-04:002011-07-26T23:57:29.476-04:00What a great gift! Avery seems to be enjoying the ...What a great gift! Avery seems to be enjoying the slip and slide so much!the meaklimshttps://www.blogger.com/profile/11125408251393399758noreply@blogger.comtag:blogger.com,1999:blog-8162123254829129332.post-35250434706284316732011-07-24T19:54:51.542-04:002011-07-24T19:54:51.542-04:00Thanks so much for leaving a comment. I have sign...Thanks so much for leaving a comment. I have signed up with the NFED, they have been so amazing. We were not able to attend the conference this year, but will be doing so in the future.daynahttps://www.blogger.com/profile/10354613961478245556noreply@blogger.comtag:blogger.com,1999:blog-8162123254829129332.post-53310724066247903982011-07-24T14:00:09.548-04:002011-07-24T14:00:09.548-04:00I found your site via google, and just wondered if...I found your site via google, and just wondered if you had been in touch at all with the National Foundation for Ectodermal Dysplasias, based in the US (http://nfed.org). My son and I are both have one of the ectodermal dysplasias syndromes (AEC), and the NFED has been a GODSEND for us.<br />Your children are beautiful! Of course, I don't know your daughter's clinical history, other than what I have read on your site, but she greatly resembles the children I was just with this weekend, at a conference for the NFED, who are affected by EEC, another ectodermal dysplasias syndrome. I would love to chat with you more, so feel free to contact me at ladyvdzine @ yahoo .com (remove spaces). I look forward to hearing from you!That Bald Chickhttps://www.blogger.com/profile/13153883099051344800noreply@blogger.com