We are very excited to be attending our first ever National Foundation for Ectodermal Dysplasia family conference this week. Brennyn and I (along with my mom) will be driving to Ohio to hang out with a few other families with Ectodermal Dysplasia (by a few, I mean over 400 people). I am over the moon with excitement. I am hoping to meet another family with a similar syndrome to Brennyn, and am happy that Brennyn will have a few days to hang out with other kids with a similar diagnosis.
Did I mention how excited I am!
The 6 hour drive may not be fun, but it will be so worth it.