We finally have our appointment with the dermatologist at Sick Kids on Friday. This is the specialist I've really been waiting to see. I hope he/she can provide us with a magic cream that will take away Brennyn's "itchies". Trust me, I've tried them all. I'm also going to ask if there is something besides Benedryl to help with her nighttime episodes. Sometimes Brennyn wakes up in the middle of the night crying because she is so itchy. I think she has had some sort of nightmare before this happens and she reacts by feeling itchy.
We have noticed that when she gets upset at anything, she gets itchy. Brennyn will be crying about her sister (for example) and the next thing she will be crying because she's itchy.
Brennyn also has white patches on her face/arms/back. Most people who have ADULT syndrome (not that there is much research to go by, since the amount of people who have ADULT syndrome is in the 100's throughout the world) have freckling, but I think Brennyn has developed the patching of her skin instead (she doesn't have a single freckle).
I just hope we can find the best cream to take away the itchies!